Friday, November 28, 2008
Thursday, November 27, 2008
Wednesday, November 26, 2008
What a handsome one month old you are! As I look at you in your "1" hat the emotions flow through me.
You see it wasn't that many days ago we were preparing to celebrate your 1 week birthday. We all wanted it to be special. The doctors had said you might not live until your "1st birthday" but you had already taught us the importance of celebrating each day, so there was no time like the present to celebrate you! So as you turned 1 week old we rejoiced at your "1st birthday" together! We were thankful for that milestone and earnestly praying for more "birthdays" too.
The day of the celebration I couldn't stop thinking how precious you would look in a birthday hat. It just seemed like a necessity for the birthday boy. The second store I went into that day I spotted a baby blue party hat. It was the only one on the shelf. It was smaller than most party hats, but I thought it looked just right. It didn't say "1 year old" but a simple "1." It was perfect, it was just for you.
I walked to the checkout ready to make the purchase. The cashier was a kind, older man. He was in no hurry to finish the transaction. As he carefully wrapped your hat in tissue he asked if my baby was turning 1. I didn't know quite how to answer. I sheepishly told him it wasn't for the baby I was holding, my daughter. I informed him I was buying it instead for her cousin, you. The kind man made some comment about how wonderful it would be for you and Adelaide to grow up so close in age. That's when God led me to tell the man more about you.
I told him how you weren't actually turning 1 year old yet, but 1 week old. I told him how you had touched more lives in 7 days than I could imagine touching in 77 years. I told him we weren't sure how many traditional birthdays you would have but we were certain we were going to celebrate each moment with you. I told him no matter what your future held Adelaide would most definitely grow up learning from you. I told him how I wanted it to be from memories she makes first-hand, but no matter what your legacy would be a part of our family. I told the man about the doctor's prognosis and then I gently asked him if he would pray for you too.
In that moment I witnessed your life reaching out to another soul, a stranger. I already knew this was happening all over, but seeing it first-hand was understanding more. The man had tears in his eyes and apologized for crying in front of me. I assured him he had no idea how okay it was. He assured me he and his family would indeed pray for you and celebrate you that day. Right then I also realized that your life had touched me in more ways than I had realized. You taught me to be more bold in sharing what God has done and is doing. You taught me there are no limits to what is "okay" to pray.
And now, here we are Witt. Three weeks have past since that day I was in the store and you were in the hospital. Your story as we knew it, has changed. Some of the things we thought we knew about your future have changed, but I am humbled that not a detail of your story has changed with God. Three weeks ago He already knew this chapter was coming! In the beginning of time He already knew this chapter was coming!
And then some parts of your story as we know it will never change. He will always hold you in the palm of his hand as your story unfolds to all around you. Your life will always be a testimony to all you touch. We will always love you and celebrate you with each milestone we witness.
I can't wait to return to that store and share with the kind man the new reasons we rejoice with you, Witt.
You, little buddy, continue to amaze me in outstanding ways.
I love you,
Shout for joy to the LORD, all the earth.
Worship the LORD with gladness;
come before him with joyful songs.
Know that the LORD is God.
It is he who made us, and we are his;
we are his people, the sheep of his pasture.
Enter his gates with thanksgiving
and his courts with praise;
give thanks to him and praise his name.
For the LORD is good and his love endures forever;
his faithfulness continues through all generations.
Saturday, November 22, 2008
Thursday, November 20, 2008
Monday, November 17, 2008
Melanie and Austan go Texas Childrens today for genetic testing on the 2 of them. It needs to be determined if this was just something that happened to Witt's chromosome 1 or if it was actually "inherited" from one of his parents. Once again I am asking God change chromosomes...that even if Melanie or Austan had a chromosomal issue that God just fix it! He can, you know...He is able...I believe He did this in Witt...Glory!!
Friday, November 14, 2008
Thursday, November 13, 2008
woke up in my bassinet,
had my diaper changed,
lounged in my bouncer,
got my first bath at home,
went to the doctor's office,
showed off my cool socks,
and drank a bottle from Dad,
while Mom fixed up my room.
Now I'm ready to do the whole thing again!
My heart will never be able to express how grateful I am to have been surrounded by your prayers, love, and food. When I first found out that there was a chance this baby could have some problems I wrote in an email that I could endure this pain for kingdom purposes. Although, when Witt was first born and we thought his days were few I was not sure how life could go on. Shame on me for doubting Gods plans. Through all the tears that have been shed over this little one I am still reminded that the pain I felt was nothing compared to what God experienced while watching his Son give his life for us. I praise Him that He did not see fit to take Witt from us at this time. My God is a God of miracles and I feel so blessed to have experienced a miracle in the form of this little boy. What I have learned and continue to learn is the importance of prayer and that the gift of life is not something that should be taken lightly. I encourage everyone to take time to truly cherish the moments you have with your loved ones. Please continue to pray, as any new mom does, I am sure I will feel very nervous for a while. I am not sure the plans God has for this family or what trials we will face but I know that God is faithful and will continue to hold Witt in His hands. Right now I am loving being a mom and am head over heals for this sweet boy. God turned my weeping into dancing. My tears are now tears of joy for the life of my son. Thank you again for all sharing in the life of Witt. All your comments and prayers truly touch my heart.
Faithfully His Servant,
Wednesday, November 12, 2008
ps- Have you ever seen such a handsome cuddly sleeper?! When he is all snug in his jammies it is too cute for words.
Tuesday, November 11, 2008
Witt has always been loved dearly, that has never been in question!
During his days in the hospital these two women were constantly there loving him. Now that he is home their love for Witt continues to grow strong, but now they get to hold their handsome grandson too!
Praise God for sweet moments in the lap of a grandmother.
Sunday, November 9, 2008
Most of the day today, Witt did the eat and sleep routine while listening to NFL football in the background.
Saturday, November 8, 2008
You can watch a video of Witt talking to one of his grandma's by clicking on the link below:
Friday, November 7, 2008
Witt adjusted well to the new surroundings at Methodist Hospital. Melanie and Karen were able to spend most of the day with him, keeping him fed and changing the diaper that seems to be working overtime now. The rules for visiting at Methodist are a little more strict, but all for a good cause. Melanie and Austan will be excited to have Witt with them at their temporary home. Because of Hurricane Ike, the Lupher's home is not liveable because of damage to the roof and walls. Your prayers for a faster resolution to their home repairs would be much appreciated.
The excitement of Witt moving in with us tomorrow is almost beyond words. We know that God has proved to all of us that prayers and His will are what we can depend on each day. Your continued prayers and comments are a welcomed encouragement as we now turn the page to another chapter in the life of Witt Lupher. Have a blessed evening.
Thursday, November 6, 2008
When we arrived at the hospital the nurse was so excited for Mel to see Witt with no tubes. He still has his IV but that will come out when he has been eating on his own a little while longer. They upped him to 33cc and will up him tonight 43cc! They may leave him here since he's going home soon but we really stressed that we would like to free a bed up for another baby that needs it! He is so cute!!!
ps- He's frowning because this grandmother turned the light on for a picture...get used to it big guy!
My heart is soaring with the awesome ways God is at work. He is doing miraculous things in Witt's life physically and through Witt's life touching so many lives spiritually. We can't stop smiling that Witt will now come home from the very hospital where he was born. God and Witt are just full of surprises! Praise Him.
"For this reason I kneel before the Father, from whom his whole family in heaven and on earth derives its name. I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen." -Ephesians 3:15-20
We are walking as family and friends closer to God together like never before. We have reached out to God like children to touch Him and to receive the kingdom of God. We praise the Creator of the Universe who has magnified His Power on Earth and changed the lives of so many. Witt is and will always be uniquely blessed. His life began two weeks ago today.
We didn't know Witt until 6:15 pm on October 23, 2008. He had a nurse that pushed for him to arrive in his time. She helped Melanie and Austan experience the amazing miracle of birth. If you were there waiting beyond those doors, you remember the feelings of seeing Austan announcing that Witt was here! Within a short time we heard from the doctor that Witt's life was going to be shortened by many physical problems.
We prayed. We prayed more and we asked others to pray. We asked God to heal, and to change whatever it was that was affecting Witt's body to be removed. Each day Witt surprised us, but never God and He gave us reasons to celebrate. Melanie and Austan overcame the sudden weakness that comes from learning about their son with a strength and love that only God promises. Their strength has impacted everyone that meets or hears of them.
We celebrate today with God who is faithful and the author of life. Witt's life has given us more life than we could know. Our priorities are different, better than they were before. God's Word is so much more than just the words now, it is the life that sustains us for eternity. I will never forget these days. I will remember the difference the strength of a child and the power of God has made in my life. How easy it would be to just move on. But God doesn't want me to just move on, he wants me to move out and to go tell the story, and share the love and difference God has made in this season of my life.
Thank you God and Witt...
Wednesday, November 5, 2008
Witt had a great day. He ate more than ever and Melanie was told Witt was going to be moved to a lower level of the ICU unit. We know that they will increase his food intake and continue to monitor his intakes and out flows. Witt's cry is getting stronger as he decides this food thing is a pretty good deal.
I am having to love him from afar because I still feel lousy but I am going to the doctor this afternoon. Melanie is not feeling 100% either and her doctor started her on cold medicine this morning. Prayers are appreciated that all of us can stay well too!
This morning I told Mel that I've always thought the story of her beginning was an incredible one. I was hit by a car while jogging then while I was being x-rayed head to toe they found out I was 2 weeks pregnant at the time. And although her story is still incredible Witt's story outshines them all!! Well actually...God outshines everything!
I just talked with Melanie and she is doing great. She said that Witt is going to be moved to Level 2 ICU soon.
He is going to get at least 22 cc of milk today at each feeding. For reference, 29.5 cc is 1 oz. She said they would steadily increase his food intake. The tube is going to be left in for now so that he will be able to take everything if he doesn’t take the entire bottle himself.
I know Mel and Austan really appreciate what everyone is doing as they take care of Witt. Thanks for your prayers and love as they minister and parent their almost two week old son.
How great is our God!
Tuesday, November 4, 2008
And now, for the REALLY EXCITING NEWS...Mel gets to try to breastfeed Witt at 3:00pm!!! This is truly remarkable news and we are praising God for all of it!!!
I can't stop SMILING!!!
I also wanted to share the following statements by Evan. I think they sum up how we all feel about Witt.
My nephew is perfect.
He may have an extremely rare genetic syndrome, but to me and God he’s perfect.
I pray that my life has even a small fraction of the impact that his already has on the lives of others.
God, thank you for Witt.
...He's in the sweet face of a tiny infant named Witt, who sleeps surrounded by scripture that his mom has prayed over him for months…a precious baby that has stolen all of our hearts and caused us to pause and consider our priorities.
...He’s in the smiles of Witt’s parents, Mel and Austan, who may be young but have walked this difficult path HEROICALLY in complete faith with a maturity well beyond their years.
...He's in our gracious friends and family who bring food, come to visit (many from out of town,) keep our kids so we can be at the hospital and on and on…but, He’s also in our friends and family who, although they can’t be with us, continue to pray for us daily...the value of that support is immeasurable.
...He’s in the waiting room of Texas Children’s Hospital...in Witt’s grandparents, great grandparents, aunts, uncles, cousins and friends who join together in fellowship. He’s in the people we have just met there and had the privilege to pray for…His presence is unmistakable.
Last night, as I was back with Mel and Witt, in awe of the Works of His Hands, I realized a truth…as much as I’d like to think that I go down to the hospital to “be there” for my family, it is I who is being ministered to each and every time I enter those doors! Thank you, Mel and Austan, for sharing your sweet, sweet baby with all of us so that we may more clearly recognize our Emmanuel! I love you guys more than I can ever possibly express!!! ~Cheryl
Monday, November 3, 2008
Witt had the feeding tube changed from his mouth to his nose in order provide more comfort. He has been doing very well with it today. The nurse also mentioned that Witt met the criteria to move down to a lower level of the ICU. Only difference is that the nurses take care of 4 babies instead of 2 as in Witt's current unit.
Thank you for your continued prayers for Witt and the family.
Please pray for Nathan who is a little boy two hours old and is hydrocephalic. We just prayed with the family here in the waiting room. Pray that God's glory will shine in Nathan's life like He has in Witt's. Blessings...
Thanks for all the encouragement and prayers for the Lupher family last night! Although it wasn't easy being across town from their little guy they made it.
Upon arriving home they were greeted with a house full of Witt's photos to see his sweet face often. They also found an awesome surprise from family friend, Pamela.
She has a business "Stuck on the Word" which makes adhesive wall art (click here for additional info.) She custom designed and applied these Bible verses in Witt's nursery and the living room where Mel and Austan are staying. These are two of the same verses Witt has on his crib. What a wonderful reminder of the way God is with us wherever we are.
Here are this morning's updates:
Witt received all of his feedings through the night!
Mel and Austan were able to get some good rest (in between getting up every 3 hours to pump).
Austan returned to work for the first time since Witt's birth.
Mel (and others) are with Witt at the hospital now and Austan will join them early this afternoon.
Thank you for your constant prayers and continued encouragement!
Sunday, November 2, 2008
Austan and Mel are currently driving home to spend the first night in their own bed since Witt's arrival (they have been staying in a hotel next to the hospital). Please pray for them as they adjust to being a little farther away from Witt during the night and that he all 3 sleep well tonight.
The Lupher and McCord Families
Praise be to the LORD, for he has heard my cry for mercy. The LORD is my strength and my shield; my heart trusts in him, and I am helped. My heart leaps for joy and I will give thanks to him in song. Psalm 28:6-7
This song keeps going through my mind...I woke up with it playing over and over: My God, He can move the mountains, My God is able to save! My God is Witt's God and I am asking Him to touch Witt's stomach...to cause Witt to start digesting food! Witt was unable to digest the midnight feeding so they are holding off again on feeding him. I praise God because He is Able and He is Sovereign. I am at the throne of grace clothed in the righteousness of Christ asking my God, our God, Witt's God to reveal Himself to the doctors by touching Witt, by healing Witt. He is able to move mountains, He is able to save!
Saturday, November 1, 2008
The nurse was there and Witt of course when I got to the room. Witt was making some noises, but only because he had just been checked a few minutes ago by a doctor. As the nurse and I talked about football and colleges, she decided that Witt needed a diaper change. I was up to the task and quickly relearned the "technique" since I had been watching Melanie change the diaper over the last week. Witt squirmed a little, but was back nice and comfy after I closed the last tab and the nurse started to rewrap him. Then without any prompting from me...the nurse asked if I wanted to hold my grandson. Thank you God. That was what I had prayed for throughout the week, that I would be able to hold him without taking any holding time away from Melanie or Austan. Thankfully, mom and dad were back resting in their room and I had over an hour of holding Witt, praying for him, teaching him what my voice sounds like and singing (off key) to him. It was amazing. He rested very soundly and even opened his eyes to look at me just to tell me that it was ok that I couldn't sing very well. A little over an hour went by with Witt and I just know that God has blessed me with a great start to my day. Here is my praise for Witt today... Jim
1 Praise the LORD. Blessed is the man who fears the LORD, who finds great delight in his commands.
2 His children will be mighty in the land; the generation of the upright will be blessed.
3 Wealth and riches are in his house, and his righteousness endures forever.
4 Even in darkness light dawns for the upright, for the gracious and compassionate and righteous man.
5 Good will come to him who is generous and lends freely, who conducts his affairs with justice.
6 Surely he will never be shaken; a righteous man will be remembered forever.
7 He will have no fear of bad news; his heart is steadfast, trusting in the LORD.
8 His heart is secure, he will have no fear; in the end he will look in triumph on his foes.