Friday, October 31, 2008
We wanted to let you all know what we are aware of so far today. Austan and Mel were told today that Witt has an extra partial chromosome on the #1 chromosome (not on #18 as orginially thought). They haven't been able to meet with the genetic specialist yet so there are many unknowns concerning this finding. The great thing with this finding is because there are so few cases, and so few case studies, Witt will be treated as a "normal" baby with a "normal" life span. This means if a surgery is necessary for the kidney the doctors would make the decision for him the same as they would for a baby with no chromosome syndrome. Mel and Austan had been told that if Witt had Trisomy 18 most likely no surgieries would be done because the expected life span is so short. We will know more after they meet with the specialists...possibly not until Monday. We are thanking God for the fact that with this diagnosis Witt will not be labeled. Please continue to pray for him to be able to digest the breast milk!! Thank you for you continued prayers, notes and calls.