Saturday, January 30, 2010
WITT STILL MANAGES TO PLAY!
Friday, January 29, 2010
THANK YOU, LORD!!!!
CARDIAC CATH NOW!!!!!
Thursday, January 28, 2010
CARDIAC CATH TOMORROW AT 2PM
Wednesday, January 27, 2010
CARDIAC CATH BEFORE DECISIONS
SING WITH ME...HOW GREAT IS OUR GOD!
Let all the earth rejoice
All the earth rejoice
He wraps himself in Light, and darkness tries to hide
And trembles at His voice
Trembles at His voice
How great is our God, sing with me
How great is our God, and all will see
How great, how great is our God
Age to age He stands
And time is in His hands
Beginning and the end
Beginning and the end
The Godhead Three in One
Father Spirit Son
The Lion and the Lamb
The Lion and the Lamb
Name above all names
Worthy of our praise
My heart will sing
How great is our God
How great is our God, sing with me
How great is our God, and all will see
How great, how great is our God !!!!!!!!!!
Tuesday, January 26, 2010
HARD MORNING!
Monday, January 25, 2010
DIOS
Sunday, January 24, 2010
NOT MUCH CHANGE
Saturday, January 23, 2010
PAINFUL DAYS
Friday, January 22, 2010
NOT GOOD RESULTS..."BUT GOD"
Thursday, January 21, 2010
MRI OVER!
MRI TODAY AT 11:30
Most couples never get an MRI of their child for their anniversary but that is the path that God has Melanie and Austan on. It is a path that they as individuals and a couple have walked with trust and faithfulness. Only four years of marriage and yet God has been infinitely glorified!
Wednesday, January 20, 2010
MRI TOMORROW
MELANIE
Witt is to the point of needing another heart surgery or a transplant but the cardiologist don't think he will qualify for a transplant and we have no way of knowing if the surgery will help. Please pray, Austan and I have a lot of hard choices to make soon.
PLEASE, PLEASE PRAY!
Tuesday, January 19, 2010
WITT WILL DO THE TALKING!
Monday, January 18, 2010
STILL RUNNING A LITTLE FEVER
Sunday, January 17, 2010
TIME FOR DECISIONS
Friday, January 15, 2010
PICC LINE IN!
"Peace I leave with you; My peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid."~John 14:27
It is the presence of His peace that keeps my heart from being troubled and keeps fear from gripping hold of me. It is His peace...not the absence of terribly horrible circumstances but the presence of His peace! Thank You...thank You to the Prince of Peace!
Thursday, January 14, 2010
IN THE PICU!
Witt has been moved to the PICU. He might be put on cpap to help expand his lungs. It was decided to give him a medication called Nesiritide. This medicine helps the body to diurese but it is not actually a diuretic. They are hoping that this will help to start pulling the fluid off. Dr. Macicek also believes it is time to do the cardiac cath test. Witt will be intubated for this so they are also scheduling the brain MRI for as close to the same time as possible. Not only do the cardiologists need the information that the cardiac cath will give them but both of the procedures are a necessary step in seeing if Witt would qualify for a heart transplant. Melanie and Austan want to at least take these steps. A lot of blood will also be drawn while he is on the vent which will also be needed for tests in the transplant process. More than ever I am asking God to make his glorious will be known to Melanie and Austan...these decisions have to be too much for them alone!
Witt is now on the Nesiritide to help him to diurese(a much nicer way of saying "pee"!!). They took his blood pressure every 15 minutes for the first little bit until it quit dropping and leveled off. So far no cpap...he actually is resting well!
LUNGS MAYBE A LITTLE WETTER
Wednesday, January 13, 2010
DOING A LITTLE BETTER!
Tuesday, January 12, 2010
ECHO RESULTS GOOD!
ECHOCARDIOGRAM TODAY
Monday, January 11, 2010
DIDN'T MAKE CARDIO APPOINTMENT!
LORD, I MARVEL AT WHO YOU ARE!
Witt has an appointment this afternoon at 3:30 with Dr. Macicek. As usual God's timing is perfect. Melanie has nursed Witt along ever since he got out of the hospital. He is very very congested and its very thick. A couple of times he has choked and had a hard time catching his breath. He's consistently on oxygen and Mel turns it up and down as needed. Most the time Witt acts like he feels pretty good. Today, Melanie and Austan really welcome the trip to Texas Children's. She's thinks there is a chance that Witt will be admitted till he gets over this congestion. At any rate, it will be comforting to have his cardiologist's opinion of what's going on and should be done! I started to write how I marvel at Melanie and Austan but the words just didn't seem right because I know that it is all God so I continued reading in my Bible. God certainly knows how to put things!!!!
Psalm 71:7~ "I have become a marvel to many, for You are my Strong Refuge."
This is why I marvel at Melanie and Austan. Not because of anything they have done but because of what He has done. He has made Himself their Strong Refuge. He is their Hope in a walk that has to at times seem hopeless, He is their joy when a day is only filled with tears, He is the very air they breathe when it seems like hurt won't allow the next breath. And somehow through it all He just brings laughter and it's usually through Witt!
Thursday, January 7, 2010
IMPROVING!
Tuesday, January 5, 2010
AT HOME!
Witt is home! He is on a little bit of oxygen because his head is pretty congested. Please pray that this congestion will go away and nothing will settle in his lungs. Up until last night the congestion was not affecting him to the point of needing oxygen. Right now Melanie has her stethoscope out trying to decide how his lungs sound...I can't imagine!!!
Witt was definitely a happy camper today at the hospital!
MAYBE HOME TODAY!!!
Monday, January 4, 2010
IT'S A PARTY ROOM!
It's been a happy new year for Witt! He has had absolutely no problem on his toddler formula and has been eating tiny bits of baby food. The doctors are getting his medicines very close to a good home schedule. AND the plans are for Witt to go home by the end of the week...it's already been 3 weeks! Today Melanie and Austan are meeting with someone from the Wheelchair Chair Clinic to discuss and hopefully order the proper and necessary equipment for Witt. They have special strollers and one particular piece of equipment that will help(and make) Witt put weight on his legs. Hopefully, this equipment can be ordered and received within the month but the whole process usually takes a while. For now we are looking forward to having Witt home very very soon!!!!
Friday, January 1, 2010
HAPPY NEW YEAR...2010...WOW!!!
BUT ALAS THE PARTY WORE HIM OUT!!!!
Today is the big change in Witt's feeding. He is being totally switched to Peptamen Junior formula. It's being diluted with water so that Witt gets the right fluid amount at 27 calories per ounce. The Peptamen is not going to be gradually added in. It will just be given as his next feed. Please pray that he tolerates it just fine!! That's the only change for now but that's a lot. I can't imagine what God has in store for Witt, Melanie and Austan this year but I can imagine that God will be glorified as He directs their every step!!!!