For now Witt remains on the ventilator. He wasn't able to be taken off of it yesterday because his carbon dioxide level increased too much during the pressure trial. Please pray that he can be taken off the vent today. Please pray that Witt's lungs will dry up...they are wetter this morning. Please pray that Melanie and Austan are being "hidden in the secret places of God." And please pray above all else that our lives are success stories, that our lives do nothing today but glorify our Christ!
Saturday, January 23, 2010
Today's post is hard to write. These last 2 days have been filled with such pain...I can't imagine what it must be like for Melanie and Austan. We will never give up hope because our hope rests solely in Christ, our Lord and Savior and Witt's Creator. We are nearing the end of what the medical profession can do and yet I know that God has no limitations. I will continue to ask God to heal Witt but make no mistake that my faith and hope are in who God is and He is Trustworthy. Yesterday, both genetics and neurology talked with Melanie and Austan. Genetics has no real case studies because trisomy 1 is so rare and even the few cases they have are very different. I won't go into detail about Witt's brain but there are several abnormalities. The neurologist doesn't expect Witt to ever walk or talk and honestly, because of the brain abnormalities expects Witt's life span to be very very short. He would not be a good candidate for a heart transplant. Dr. Morales is out of town but he will be consulted early next week about doing any kind of surgery to the heart. We don't know if this is possible or what is best for Witt. What I do know is that God is Mighty...Mighty to Save. I know that God is Trustworthy and He can do nothing less than what is absolutely the best for Witt...His best for Witt! I know that a true success story is a life that brings God glory and has nothing to do with the number of days you are on this earth. I know that Witt's life is the greatest success story I have ever seen!!