Friday, March 6, 2009

UPDATE, FRIDAY, MARCH 6th

We don't really have anything new to update but we definitely want to keep in touch with YOU!
Please join us in praying that the feeding tube will make a difference in Witt's condition. We are so hopeful that this is the reason for, or, at least, a HUGE part of, the hypertension and wet lungs. While we are all saddened by the prospect of Witt being on a feeding tube for an extended time, this seems to be a relatively "easy fix." (I want to remind you here to continue to lift Mel and Austan up...this "easy fix" means that they may never give Witt another bottle.)
I was finally able to go down to the hospital and just "hang out" with Mel and Witt today. It was so fun to just laugh with Mel! She's the same "Melski" through all of this...a perfect combination of feisty and tender...and, a "mama bear" that is going to bat for her son at every turn!!! Witt is just a darling and looks fantastic...there is NO doubt that he simply ADORES his mommy!!!
As I've said many times before, I not only love my Luphers, I'm inspired by them!!!
~"Fantastic Aunt" Cheryl
(because I'm not old enough to be a "Great Aunt!")

2 comments:

oleyfriends said...

Hello!

I found your blog and wondered if you had heard of the Oley Foundation yet.

We offer free information and peer support for families like yours with a member on home tube or IV feeding. Check out our website at www.oley.org.

In particular you might be interested in the

• Tube Feeding Tips page
http://www.oley.org/tubetalks.html

• Meet Patients Section (try all three links)
http://www.oley.org/volunteers.html
http://www.oley.org/call.html
http://www.oley.org/forum.htm

• Oley's annual conference -- where you can learn a lot about tube and IV feeding and meet other families facing similar challenges. Preliminary details are posted now, but keep checking for updates at http://www.oley.org/2009_Annual_Conference.html
There are travel scholarships for first time attendees.

If you have any questions or would like to be introduced to another family, feel free to contact me.

Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY

Kelly said...

I just wanted to tell you that I'm thinking of your family today and I prayed for you this morning. Witt is such a special little boy - I've been following your story since he was born and I was so broken when he was born but he is defying odds and I can't imagine how tired you must be but I pray that God sustains you and gives you strength day after day. You are an amazing family!