Wednesday, March 11, 2009
Yesterday afternoon was a hard time for Melanie and Austan. The attending came in and talked to Melanie more about the cardiac cath test. The doctor who would preform the actual test will come by sometime today to answer all their questions. Since Witt is improving, the attending was also going to go back to pulmonary to make sure the test was necessary right now. As I believe I have posted before, this very invasive test is the only way to get exact measurements of the pressures in the lungs and heart. It would however mean Witt would be totally knocked out and intubated so it has risks! The doctor also talked to Melanie about putting a permanent feeding tube in Witt. It's permanent by structure not duration. Right now Witt's feeding tube is through his nose. They only like to leave a tube there for no more than 30 days then surgically insert it through his side to his stomach. This really hit Melanie hard. We know Witt has been aspirating so fluid has been going to his lungs instead of his stomach. Since he has been on the feeding tube, his oxygen has been cut in half and could be turned down more. How long Witt will need a feeding tube depends on how long Witt takes to learn to swallow correctly. A ballpark guess is 6 months to a year but that is just a guess and of course does not include God! What I saw God do was nothing more than miraculous with Melanie. Melanie was once again crushed. She said she feels like she keeps getting up and run over again and again. The fact is its pretty true...I couldn't tell her she was wrong. Her anger yesterday is certainly understandable but I got to witness a transformation. I watched as God ministered to her through a 3 week old baby (Thomas Gilmore: http://www.carepages.com/carepages/ThomasCrawfordGilmore) who is having heart surgery today. Thomas' aunt is a friend of ours. I don't even know if Melanie fully realizes what happened. I watched as Melanie moved from being overwhelmed by her circumstances and looked outside her situation. Melanie reached out to this family who she has never met. At 10:00 last night Melanie left Witt's room to try to find the mother. Melanie doesn't like to leave Witt's side very much but God lifted her out of her circumstances to sit once again with Christ in the heavenlies! What an amazing, faithful God we have. He is Love!! Over the next couple of days Melanie and Austan will need to make hard choices for their son...choices that most of us will never have to make. Pray that God reveals the correct path for them to follow...the path that for Melanie, Austan and Witt the fullness of God dwells!!