Witt is staying warm!!!
Witt has been doing great! There have been no issues since our ER visit on new years. We have been very busy with doctor appointments for the new year. Witt went to my favorite lung doc at TCH, Dr. Ruiz and he said Witt looked like he was doing great. We talked a lot about the ventilator and turning his support down which we ended up doing. They took Witt's breath rate, number of breaths the machine gives him from 24 to 22. Nothing big but it is a start. Although there are no plans to take him off the ventilator any time soon. It has almost been a year since Austan and I decided to have the trach surgery done for Witt. He as had some serious surgeries but putting his trach in was the hardest one for me. I did not want to do it at all. When Witt came out of surgery and even a few days later he seemed so miserable. Austan and I for the first time were really second guessing our decision to have it done. Now almost a year later of having all the extra equipment in tow, which has not always been easy, Austan and I know we did the right thing. The trach and the ventilator as given us the most normal life we have had since Witt was born. Mr. Witt has also been dealing with some ear infections. Our last visit with his pediatrician he thought Witt's ears looked good but we have an appointment with the ENT on Monday. Witt also has an appointment with the eye doctor in a couple of weeks and I have to say I am the most nervous about this. They have to dilate his eyes and look in them. No kid likes to have their eyes held open. I can already feel my over protective side bubbling up just thinking about this appointment. If you would please pray that it won't be as bad as I'm thinking and if it is that I will remember they are not trying to hurt him. Witt is doing really well in therapy. He got this new vest called a spio. It looks like a little wet suit and it provides extra trunk support. He is very close to sitting up on his own when he is wearing his new vest. We are also waiting for his new stander and bath seat to be delivered. I'm very excited about those. Since Witt is doing so well we don't have as many day to day things to update the blog with. We will always try to put pics and keep everyone updated on the good and fun things Witt is doing.