Friday, April 9, 2010

STEPS CLOSER TO HOME AND TEETH!

Mr. Witt is doing Great!! Yesterday his B.U.N was going up which is a function that his kidneys are not getting enough fluid. The doctors, PCU team and cardiologist got together and decided to first try to give him extra water through his g-tube before giving him fluids through an IV. It is working great because his numbers are much improved. Today we also had our home health company drop off some of our supplies like Witt's pulse ox monitor, ventilator bag, and portable suction machine. You would not believe how they make this equipment so you can travel and feel like your life is a little "normal". We are making great steps in completing what we need to do to go home. Austan and I have had a huge list of things that we had to learn before we leave. One of those being having a nurse watch us change his trach. I was first up today and I was so nervous. I had to pull the old one out of his neck and put the new one in. My hands shaking but I did it! It took about 10 seconds and it was much easier than I thought. Austan has to do it on Sunday. We will have to change the trach once a month when we are at home.
On a side note, when Witt turned 1 he still did not have any teeth which is not unheard of but made me a little worried. Doctors told us kids with genetic issues can have bone growth problems and may have problems growing teeth. Since we know so little about trisomy 1 no one knew exactly what that meant in regards to his teeth. Getting teeth is something I don't think most parents worry about. They just seem to appear. I use to say, God after everything that is already different about Witt please just give him some teeth. In December I noticed it looked like he was getting a molar and within a week he had all 4 molars coming in. As we all know Witt likes to do things his own way so why did I think his teeth would be any different. Everyone thought it was odd he didn't have any teeth coming in the front and told me again maybe he wont get any. One doctor showed me in a chest xray which shows a little of his jaw you could see teeth in there. I have been praying for teeth to sprout up and I have good news... Witt is now getting a new tooth on the top and the bottom! They are still not in the very front but I think they are working their way forward. The point of all this story is in the midst of all Witt's serious problems I never want to forget to praise God for the things that seem so small. So each little tooth I see in his cute mouth makes me so excited. I know Austan thinks I'm crazy because I make him stop whatever he is doing and come admire the newest member to Witt's mouth with me. Our total tooth count is 6!
Thank you, thank you for all the prayers, emails and comments. I wanted everyone to know even though my mom is the one who updates the blog most of the time that I do read each and every comment. My mom also shares everyones emails with me too. Austan and I feel so undeserving of everyones unbelievable support. I hope everyone has a blessed weekend!

Mel

9 comments:

Witt's Family said...

Melanie, I am blessed beyond measure to be your mother. I am having a hard time writing what I want through the tears of joy that are just rolling down my cheeks. I think how much you absolutely hate going to the doctor and how there is a real fear there. Now, you are taking a trach out and putting a new one in, your life with Witt has been mostly in the hospital or at a doctors office and yet instead of letting fear take hold there is joy and laughter. My sweet little Mel...I celebrate Witt's teeth with you and stand by your side praising our God!~Mom

rise' said...

Oh Mel...this is such a great post. I've never been so excited about teeth! I love you guys!!!

Primitiques 'n Poetry said...

Mel, having been gone to the show, I have missed so many updates! What a pleasure to catch up on a post that you, yourself have written. I love the expression of love and praise for Witt's every tooth. And I just read your mom's comment and dang...y'all have me bawling like a baby. Love is a wonderful thing. This is me praising God for teeth and for your family. ~Mindy

lynn said...

Oh, Mel, you are such a blessing! Only God could take that little girl who passed out in the doctor's office and give her the courage to change her own child's trach. Thanks for choosing to let God be so glorified in and through you, Witt and Austan! Praise God for those little teeth! Love you!

Sonja said...

Yes, it is pretty amazing that a tooth or a t-t diaper or a smile have come to be so very special. I think Witt looks just terrific. The way he smiles and looks at you guys and his color and expression... he just looks wonderful!

So now the next prayer is to home sweet home!

Love you all,

Sonja

Karen and Mel... you need to consider doing a book on all this, and all the stuff going on in the background with other people etc. I'll buy the first copy!

Elizabeth said...

We love sharing your precious Witt!!and pray for your family daily. I am so excited about Witt's teeth, my twelve year old Sam, is always asking me " Mom how is Witt today" Thank you once again for sharing your precious family.

annalee said...

i love you witt. i love your grin and every little thing growing inside it too. you are so precious to me. your mom is sooo presh too. xoxoxoxo

Kelli said...

Teeth are such a big deal and I just squealed for you that he has teeth!

Anonymous said...

Inspiration!! All of ya!! Blessings! and woo hoo for toofies!! mel, you are cool! love you all!! donna jo